By: Revanche

Living in the time of pandemic: COVID-19 (137)

January 16, 2023

Year 3 of COVID in the Bay Area.

Year 3, Day 293: We were doing so WELL for a few days there. Smol Acrobat was eating most meals with gusto, they were communicating better and best of all: were not coughing, sneezing, dripping, or burning up. Until today.

Add that to the last three days of terrible sleep (worse than my usual, which is saying something), caused by searing pain in my neck and shoulders, and feeling really shitty about the weekend of conflict with JB which had me feeling like a total parenting failure. I could absolutely cry today.

All I want is a burger, fries, and 16 hours completely alone with my computer, some books, a pile of blankets, and Sera.

Sigh. None of those things are happening, of course. Not on a Monday, not with a sick Smol to tend to. I vented to some friends and sat at my desk, glumly working as fast as I could, wanting to let out the stress with tears but not being able to.

At some point, the thought occurred to me: everything feels very hard right now. Maybe it wouldn’t be the worst thing in the world to give myself a little break. Maybe I can commit to just a little time to myself, sometime this week, if Smol can be away during a school day.

My therapist often says being gentler with myself would help let off a little of the pent-up pressure and I usually don’t know how, but that silent ghost of a promise helped.

I stress ate some candied pecans (why do they sell these by 6 oz bags and not the pound?!), went in on a little lotto pool with a friend, tried to set up Yotta and got rejected, and discovered that Smol can put on their own jacket. I had forgotten they would have learned at daycare by now, so when I asked semi-jokingly “can you put on your coat?” and they said “yes”, well surprise surprise, they can! Only when they’re inclined to.

This tweet thread is timely. Given these two options, if I am transparent at all, I’d almost always opt for emotional transparency instead of vulnerability. I get close to emotional vulnerability here, mostly, and with a very few other people. I think it’s because I am so accustomed to people not showing up when I express a need or a struggle. I expressed it in the past and I was still on my own. So why bother? Why bother and be disappointed when I could just skip that entirely? I understand the flaws in that thinking now but I remember why it developed.

Year 3, Day 294: Treating my pain today is a whole universe away from when I first experienced my chronic pain 27 years ago. None of these factors listed on the tweet below were ever examined back then, most certainly not the trauma bit. It’s not eliminated my pain, this week is a huge reminder of that even if I were inclined to forget, but it makes a big difference. I can function more. The joy is dampened by having developed ME/CFS in the meantime but I can appreciate the reduced pain frequency nonetheless.

What reduces PAIN?-movementšŸƒšŸ»ā€ā™€ļø-ā¬‡ļø stress + anxiety-good sleep + nutritionšŸ„—-social support-sunlightā˜€ļø-treating trauma-pleasurable activitiesāŒTreatment is NEVER just a šŸ’ŠšŸ“£It must target cognitive, emotional, social, biological AND environmental factors#MedTwitter

Year 3, Day 295: Alas, we did not strike it rich on the Mega Millions, friend and I bought tickets on a lark, so after a terrible night of hysterics and some vomit for Smol (with PiC and I sort of splitting the night), and night sweats and nausea for me, it’s back to the donut factory for both adults this morning. Darn.

Semi-related: My sense of taste is all off this week. Things taste metallic or “chemically” (I don’t know how else to describe it) to me, where they taste perfectly fine to others. This could just be my normal weirdness rather than anything COVID. I go through cycles where potatoes taste bad and carrots taste like soap. No idea why, but I hate it. Last night’s Japanese curry dinner tasted too salty and my berry flavored sparkling water tasted like medicine. šŸ¤·šŸ»ā€ā™€ļø

~~~~~

Some days I feel all kinds of conflict internally: I want to be up and about, I want to curl up in a ball and hibernate, I want want want. It’s puzzling today because I already let myself lay down for a couple hours today to rest, anticipating another hard night with Smol Acrobat. These feelings make me feel like a child. Shouldn’t I feel like an adult by now, here in my 40th year? What does an adult even feel like?

In fact, that reminds me of a conversation I had with my friend and mentor who is starting a new stage in life and likens it to being like a toddler again: it’s exhausting having feelings, feeling them, and learning how to navigate them. No wonder we get sensory overload and exhausted.

Speaking of lacking emotional vulnerability: I saw a tweet asking for help for a stranger going through medical issues, from a friend of theirs, among many many other Mutual Aid tweets. It struck me, again, that my whole emergency and savings planning revolves around never asking for help. I want to save enough for retirement and for our future health needs, and set very high goals, because I don’t ever want to tell anyone that we need help in an emergency. I spent too many years digging out of financial holes, and getting set back frequently, and I can’t believe or trust that anyone would care enough or be able to help us if we hit the rocks. SMH. My scars run deep.

~~~~~

A whole lot of friends discovered they had ADD/ADHD during the pandemic, and I was happy that they were getting treatment that helped. It took Abby’s latest post to make me start wondering if I might have a touch or more of it. I emailed my GP with the list. I am a slow learner!

Weirdly, as I sent it off, I had this bizarre feeling of “no I don’t WANT to have another thing wrong with me!” I was almost embarrassed. I feel so broken. I already have fibromyalgia and ME/CFS.

And yet, I will have to laugh if I end up with another diagnosis, courtesy of blogging friends. So many gifts from Twitter/blogging/the internet.

Year 3, Day 296: Much less overnight hysteria from Smol last night, though they still had multiple wake-up, which was much appreciated because my joints and tendons are furious today. It feels as though iron spikes were driven deep into my joints. It was impossible to find a comfortable position to sleep in that didn’t make it worse.Ā  So, that’s fun! /sarcasm

~~~~~

I’m trying to redeem an expense benefit from an employer today. They offered a small stipend for certain expenses this year so I chose to use it on daycare.

Since daycare won’t take credit cards, we paid in full and followed the directions (I read them three times) to submit a claim for reimbursement with the receipt.

Dear readers, they rejected the claim today because “you paid in full”. Yes, we did, that’s why we’re asking for a reimbursement. Duh? Who asks for a reimbursement when they didn’t pay? That’s a whole other verb. That’s what the whole reimbursement and uploading a receipt process is for, is it not?Ā  Annoying. I’ve submitted a help request. Let’s hope someone gets their head out of wherever it’s hiding. I’d like to cross this thing off my list and deploy that money where it can do some good.

 

9 Responses to “Living in the time of pandemic: COVID-19 (137)”

  1. With our DDA they wouldn’t reimburse us until after the care had actually happened. So we could pay and submit a claim, and the first company would deny us and tell us to submit again later, but the more recent company would hold on to it and send us reimbursements every month. This is all years ago though.

    • Revanche says:

      Our current company does the latter, but I don’t think they’ve ever cared when the care happened. Just when the charges were paid.

      This particular stipend is a weird new thing separate from the DDA so either they’re so new they don’t know what they’re doing or they haven’t told us the secret rules to reimbursement. I can’t even decide which to hope for.

  2. SP says:

    I’m sorry your week was so rough with Smol & pain issues.

    I’m looking into whether I have ADD too. I was struggling with depression, so had to resolve that first, and now I’m getting evaluated. I’m not really sure what to make of it if I am indeed diagnosed, because I feel a bit hesitant to medicate when I’ve made it this far in life with systems. But the pandemic removed a lot of structure from my life, and while I’m putting the structure back in place, it is never going to be 2019 again. So, we’ll see. I also don’t want to have something “wrong” with me.

    • Revanche says:

      Thanks.

      Happy to discuss with you more if you want to explore diagnosis. I suspect my depression keeps trying to creep up on me so that doesn’t help. But ultimately in discussing lots of symptoms with friends who are very familiar with it, I’m hearing a lot of reinforcement for getting a diagnosis and seeing if there are meds that can lighten the load a bit. I’m hearing also that it’s quite a lot more common than we often believe, and that it’s not having something wrong with you to have been playing life in a harder mode than you realized. Sometimes systems get me through but they can’t take away my unrelenting frustration and rage and stimulation seeking (whereby I take on way too much in search of some dopamine hits) or feel empty when I don’t take on too much even while I know my fatigue problems are worsened because of this need to keep producing the desired feedback.

      I think after talking it through with this friend, I’m a lot more open to the idea of meds, I’d like to take the edge off without having to construct elaborate (for me) systems.

      • SP says:

        Thank you for sharing this – yes, maybe interested in chatting more! It was honestly something I had never considered prior to the pandemic, because…. in many ways, I’m very organized and good at planning. And who doesn’t procrastinate or miss details or [insert various struggle]? It is all somewhat normal, but also… it is maybe not. The first therapist I saw (for depression) was the one that hit on it for me. After she pointed it out, I started thinking “maybe this is something….” So, we will see where it goes.

  3. Bethh says:

    Another diagnosis does sound a little daunting, but perhaps it would help with better understanding yourself and finding adaptive approaches to life – which seems like a helpful thing, big picture. And also it seems understandable to not welcome yet something else.

    The metallic taste seems really odd! A friend also had that happen recently and it did go away on its own. I hope thatā€™s the case for you too. In case itā€™s helpful/relevant, apparently pine nuts from some regions can leave a residual taste for some people for a few weeks – any chance thatā€™s the culprit? (It wasnā€™t the cause for my friend.)

    Iā€™m definitely not one for asking for help, and since Iā€™m unpartnered I think that could play out on unhelpful ways sometime. I guess Iā€™ll find out.

    Giving yourself some space and grace seems like it could only be good. I hope you can find more windows for that.

    • Revanche says:

      Yes, that’s what I’m trying to view this as: big picture help and not just small picture ARGH WTF.

      Interesting! I’ll have to start paying attention to when it starts and stops in case there is anything tying it together. I don’t think about it consciously enough to remember yet. Can’t recall if I have or haven’t had pine nuts recently.

      May we both learn to start asking for help when we need and want it, if it’s more helpful than not!

  4. Bethany D says:

    Ah the ‘joys’ of co-morbidities and overlapping symptoms. :/ Technically I have several ADHD symptoms but in my case I’m pretty certain my executive function has just been turned into Swiss cheese by long-term insomnia. I hope you get an answer that feels right and helps you know how (or whether) to address it!

    • Revanche says:

      The joys, indeed! *Shakes a fist*

      I mean, could be both, right?? I also have long term insomnia so that’s definitely also a problem here. šŸ˜šŸ¤¦šŸ»ā€ā™€ļø I’m told, by a friend with some experience, that the ADHD can affect sleep so perhaps there’s a chance the sleep problems could be caused by rather than being the cause of the loss of executive function. Who knows!

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