Year 4, Day 356: Nothing like avoiding any Sunday scaries by being so completely exhausted that you can’t even think ahead to Monday. We overdid it on the weekend and today we need a secondary weekend for recovery. That would be nice, wouldn’t it?
A very small part of it was I finally had the werewithal to pick two Lakota families to help. One family is grieving the loss of a son and have been on the list since January without much help. They were in need of propane, formula, clothes, and diapers for the baby, and clothes for the surviving family. I requested to tackle the propane, formula, diapers and wipes. The second family was almost out of food, and they’re also the home where people keep dropping off dogs that need feeding and care. I put together a giant grocery shop for them while I waited for the information I needed to complete the orders.
I’m annoyed with Costco Pharmacy. They save us a bit of money but I called in a prescription on Saturday and they gave me a choice of picking it up Saturday after 2 pm or Monday after 2 pm. Every time I called for an update, it was “scheduled to be filled”. They didn’t bother to fill it until today after 2 pm. So why offer that option if it wasn’t really an option?? Huff. Thankfully I had enough brainspace to figure out the refills while we still had a week left. I wanted the Saturday pickup because weekday pickups are so much harder for us to squeeze in.
Dinner: Frozen lasagna + yesterday’s leftover meat sauce +plain pasta for Smol Acrobat because the frozen lasagna is a little too spicy for them + 4 leftover ravioli + frozen green beans. Both kids were intensely irritating about eating their green beans but they ate them all in the end and Smol Acrobat even ate all of their pasta and the meat sauce under their own steam. Yesterday the meat sauce was a big frickin’ deal. Today they kept telling me “I am eating my pwotein. Are you happppyyyy?”
Year 4, Day 357: Day 2 of weekend recovery.
My Big Task is mostly completed! I should have done this a long time ago. I knew that I should and had started the process, so I shouldn’t complain, buuuut it’s no fun and I’m going to complain. I’m finally separating my work and personal digital lives from the one computer. It’s just so much more convenient for them to be on the same machine, I could multitask so much more easily, but it’s better to keep them separate so I bought a laptop for household use last year. Several months later, I set up logins for ourselves and the kids. Another several months have now passed and now push has come to shove, changes in our systems mean it’s time for me to fully remove the personal from the professional. The process took hours: moving bookmarks over, backing up the files to our external hard drive and our cloud system to transfer them to the new laptop, and THEN to remove them completely from the work machine. HOURS. So many hours. And errors. And disconnections. And one mysterious failure where the power to the modem and our server both failed even though it was plugged into the Yeti to prevent exactly this loss of power that interrupts file transfers. I’d be tempted to say that I SHOULD have done this in stages but that wouldn’t work so well either because the point is to transfer the full contents of the hard drive at this specific moment in time and carry on working on personal stuff from that date forward entirely in the personal computer. A multi-stage transfer would mean I’d miss files that were changed in the interim period because I’m always doing something.
My personal files are all transferred to the home computer. Now I am practicing typing, the keyboard is just different enough to throw off my typing, and get in the work groove so I can make some decisions about critical software. I despise the Microsoft subscription model so I went looking for and found that we can get an older Word product key from Costco for $150 (plus a $25 Visa back). Or other places, I haven’t looked at them yet. That’s probably the software I’ll need the most.
Year 4, Day 358: Day 3, I think the PEM is finally starting to fade after 2.5 really tough days and nights. My bones still have lava for marrow but the deep and full-ton fatigue has lightened a bit to a more normal load when I’m trying to walk Sera. It’s not quite over yet, though, and this is probably where I accidentally overdo it because I think “I’m ok now!” Reminder to self: not quite yet.
I did one very slow walking set of karaokes on our morning walk and we went on one slightly longer walk midday but that’s it. I’m pacing myself!
Well that and I did the other half of a massive food prep. We got takeout yesterday so with some of my time saved, I cut up 6 lbs of meat and made the nuoc mau for the thit kho. Today the stock pot came out to play. I boiled the meat to clean it, set it to simmering for 3 hours, adding things periodically to end up with a large entree for dinner, two freezer portions for other non cooking weeks, and sent a large portion to our friends for their dinner. I’m satisfied with my performance in the kitchen for once, though I cooked it a little longer than intended and the meat is literally falling apart. Whoops! I really need more childhood recipes that can be frozen for later eating. Most of our recipes weren’t that sort of meal, they were all meant to be enjoyed fresh.
Feeling: So glad it’s not Monday anymore, so glad it’s not Thursday yet.
Year 4, Day 359: Taxes are in process. Will update is in process. Which genius thought it was a good idea to do those at the same time??
I thought my diet needed to be adjusted a bit to get to a shape I felt more comfortable in. It was a theory, attempting to lose weight has never been a thing in my life. It wasn’t about the number on the scale, I just hate(d) how my body has changed and feels after two pregnancies. The feet changing sizes is annoying, one changing to be a half size larger than the other is annoying, the stretch marks are intermittently annoying. All annoying but ultimately ignorable. My belly shape isn’t ignorable. Last month, my jeans were intensely uncomfortable after 2-3 hours. So I thought I’d have to figure this out.
I never even tried my lower carb trial since 2024 has been terrible, I didn’t want to give up one gram of carb or sugar. I did add in salads for lunch courtesy of PiC. (I’m terrible at feeding myself when it’s just me during working hours. I’m even worse at eating my vegetables these days so these were a neat fix for both problems.) What’s changed?
I’ve been going out on 5-6 walks a day with Sera since January, that’s the same.
I threw in those karaokes a few days a week recently. I noticed I’m just less hungry during the day but always hungry late at night when I’m too tired to do anything about it. I haven’t put actual effort in but it seems like maybe I’ve gone from a 4.5 month belly to a 3.5 month belly. Soft pants are still the best but the jeans aren’t awful anymore. I’d like to shed another couple inches to feel more myself but we’ll have to see if it happens with my current routine. I’m just trying to keep up with life and Sera’s š¶ needs and I don’t have the energy to experiment with more.
Year 4, Day 360: Sera had more bloodwork. I’m crossing everything that the results come back looking better. She’s getting balky about these visits, she doesn’t want to go at all anymore. It’s a poke every time and she hates it. And I feel terrible but it’s gotta be done.
PiC usually makes time to do that during the week but couldn’t make it happen so we all went tonight. (I have a Pavlovian need for hot dogs anytime I even think about going to Costco. Anyone else?)
Somehow I managed to get through all my work and a little of my backlog today, so that was good but I was also totally wiped out by the end of the night. I should have reconsidered…well, no. It’s hard for PiC to do Costco with both kids in tow. One or the other is doable but both is just an exhausting combination, plus I needed to run a specific Costco errand as well. So it’s good that I went, I’m just knackered.
*****
I notice that some neighbors never cover their windows. Not even their front facing windows, so people can see into their home day and night. What is that about? It creeps me out on their behalf even though it’s their own privacy they’re giving up.
*****
I grew up loving Tracy Chapman’s Fast Car without ever knowing the name of the song. It came on that radio today with the wrong name: Luke Combs, and JB’s friend started singing it. That was all kinds of confusing so I had to go down the rabbithole. Oh, he’s covering the song. And then I found this and it pulled up all kinds of feelings. What a world we live in.
Year 4, Day 342: I’ve moved the toothpaste well away from the lotion on the vanity. Just to be sure.
This week has to be an early out the door week. Last week needed to be, too, but we didn’t manage it. My heaviness pinned me to the bed most mornings, too tired after a night of painsomnia and sadness to crawl out earlier. Today was a more promising start. It was physically painful but I got out 20 minutes earlier, closer to my preferred time, and even got JB to school at the earliest possible drop off time. It was a good warmup for tomorrow when we have to get PiC out even earlier so he can make a meeting.
We’ve got work meetings, the PTA this week, and a Sera š¶ appointment this week. Fingers crossed that no more than that gets added to the calendar.
It was an unusual “only small problems, no giant fraud rings” Monday and I’m fully appreciating it. I’ve got to get back on my management horse tomorrow and deal with some training and staffing things but any reprieve is a good reprieve.
Yesterday I attempted three rounds of planks on my hands instead of my forearms. This is the first time in decades that I’ve tested my hands and wrists this way. For years, any pressure or weight on them would trigger a flare. It’s been a real sinker of my morale because my one strength was upper body strength as the runt in my class. I’m hoping I can build up to some strength and tolerance in them again but this is my warning to myself to skip days in between so I don’t stress them right out of the gate. Tonight, they’re mildly twingy, not quite stiff or painful, so I’m hopeful I can do another short set tomorrow. š¤
PiC brought home a large slice of the most decadent chocolate cake we’ve ever tasted in our lives. We don’t even like chocolate cake but this was heavenly. It’s from some specialty bakery up too north to be worth the drive so obviously we’ll never get it again. We will have fond memories. š
Year 4, Day 343: Well. I got that early wake up. PiC discovered, to our great dismay, that Sera š¶ had had an accident inside. We’ve been so careful to walk, medicate, feed and water her on a very specific schedule to make her comfortable enough to get through the night. Walks every 2-4 hours starting at 730 depending on her mood/need, meds by 3 pm, last food and water by 8 pm, last late night walk between 10 pm-12 am. 8 weeks without incident. Then I screwed up. So busy with work, I missed her 3 pm meds alarm yesterday, and it threw her enough out of whack that she couldn’t make it through the night. Nothing like a 6 am wake up to go scrub floors together. Sigh.
I carefully calibrated her schedule for the rest of the day to take her out six times to empty her bladder sufficiently to make it through tonight. Six walks today, plus four JB pickup and dropoffs, plus work, plus throwing together dinner (part leftover, part baked salmon).
Then I threw in a half hour of reading aloud to JB because I want them to give Diane Duane’s Young Wizards series a chance to see the contrast between the empty calorie racist Harry Potter series and a well written wizarding series recommended by Ursula Vernon. I love anything Vernon writes so I figured her taste in books has to be pretty reliable. Not that I expected it to be like her books, it doesn’t work that way. But she’s a thoughtful person and an author who enjoys reading, that tends to add up to good recommendations. Anyway, Young Wizards starts out a bit more dense than they’re used to so I decided to read it to them and let them ask me all the questions. We’ll see how long I can handle making this additional thing work.
My wrists held up through 3 very short rounds of planks. They twinged after but not terribly and if they recover throughout tomorrow, I can try again on Thursday.
It’s not 9 pm yet and I’m dropping in my tracks. But I still owe some people some answers so back online I go for another 1.5 hours of work, and then I’ve got Sera’s last walk. If I manage to make lights out at 11, that’ll feel almost like a win.
Reading Fiqah’s obituary (gift link) made my sadness feel heavier, albeit clearer. She deserved better than this. She was a good person.
Year 4, Day 344: I had dreams all night that Fiqah was still alive and we were still able to help her. I hate how those dreams about our losses linger in my psyche all day long. I get them with my mom and past dogs, too.
I’m trying to shake that ‘I’m such a downer’ feeling with everything going on and find something joyful. Then I remembered that a friend sent me this pilot of The No 1 Ladies Detective Agency show. I’ve read all the books and didn’t know it was a series! Sadly, there’s only one season, but that might be the pick me up needed. Jill Scott is absolutely perfect as Precious Ramotse.
Also I SHOULD feel triumph over finally figuring out a foreign tax claim back form that took me hours to work on. I’m not feeling it yet but I’m reminding myself that that was big. More than one of PiC’s colleagues weren’t even aware of that tax claim form’s existence so I should also be a little proud for digging deep and finally finding something that refunds a significant amount of money that doesn’t seem to be common knowledge. They’ve asked PiC for a guide which means they’re really asking me. They’ve been good colleagues to him so I’ll save them a bit of legwork but it’ll need to be when I’m a little less tired.
Year 4, Day 345: A friend commented on her burnout and what she described, feeling upset/angry/cynical about the world, our government, the pandemic and the CDC, our future, do we have one??, climate change, it’s all very much how I’m feeling, plus my personal grief from losses this year. It’s all too much and it’s all so heavy.
It’s probably not normal to mentally growl “UGH I HATE YOU” to every email you write, even if it’s well deserved, to fraudy fraudpants customers. It’s probably not normal to feel like giving up after being asked to do even the smallest slightest extra thing. I’m feeling like the proverbial camel and the last straw has been sliding on top of the pile. That’s been a dark cloud hanging over my psyche for months.
My working day was almost entirely derailed by a huge shakeup at work that required hours of follow up. That’s a huge thing I’m processing, interspersed with Sera’s frequent outings, school pick up, after school activity, and then throwing dinner on the table in time to try to listen to the PTA meeting, whew. I was back at my desk to clear off the last remaining things that I needed done before a long day ahead of me tomorrow.
One good bit, though it’s more work for me: JB asked if we could read more So You Want To Be A Wizard tomorrow night. I actually really hate reading out loud but it’ll be worth the sacrifice to encourage them to stretch their reading horizons a little.
Year 4, Day 346: Friend shared this and I couldn’t help but laugh.
PiC got his tax claim forms notarized so I can try to wrap up THAT one small section of taxes. I have to wait another week before I can finalize the package for our tax person to get working on them. I’m really resentful of the one company that went and asked for an extension because I could be DONE by now but they’ve put me two weeks behind. Grumble.
It turns out my tax person may be wrong, and I don’t have to file a tax return for JB to prove they have earned income before I can deposit their business earnings in a Roth IRA for them. They had a handful of sales last year, not enough to need to file a return, so that would be the only reason I’d file. I certainly don’t intend to sign up for extra work if I don’t have to! I am a little excited about opening the Roth once I figure out what’s net after expenses.
I’ve been taking up Sera’s š¶ water after 8 pm because she’s drinking so much that she’ll be full to bursting before I get up to walk her in the morning. She followed me around as I got ready for bed, and oh my goodness the LOOK I got when I filled my water bottle and didn’t give her any. It was grim. I felt so bad. But I also can’t get up in the middle of the night to take her out, I’m too physically exhausted from the 5-6 walks a day plus everything else I do. I need some unbroken sleep. One wakeup doesn’t equal two ok blocks of sleep for me. It means a splinter of sleep because my anxiety about waking up would prevent me from sleeping, and then I’d be too tired and wired to fall asleep again until just half an hour before needing to get up. My body is like clockwork. Deranged, broken, irrational clockwork.
Year 4, Day 328: This day’s theme: It’s all a LOT.
Reading up on what Sera might have (probably has) and getting to this part has me wanting to yell cusses: “This is a life-threatening cascade of events and, in fact, a 20-80% mortality rate (depending on the study) has been reported with this disease.” I can’t. She’s sleeping right over there and yelling or cussing would wake her. But I want to.
That’s a huge range but more literature points to a worse prognosis generally than a good one. We have to increase her steroids again and add a second medication to try and stabilize her, and that’s terribly depressing.
My therapist asked if I’m feeling supported by PiC and friends through this and I didn’t understand the words. Support for what? I’m not the one who’s sick. (Well, I am but I have a cough, not something hemolysing my RBC.) All I could do for the past month was take care of her and hope like hell that she’s going to respond to the treatment. I’ve been holding my breath this whole time and probably repressing my feelings with caretaking. Because after that first cry when we discussed all the possible options for why she was jaundiced and anemic, all bad options, I felt the loss of Seamus crashing down on me again. I can’t DO that again. Not so soon.
***** (more…)
We have a nine year old! š JB got a small party this year.
We booked part of a pizza parlor early in the day so we were the only ones there. 9 kids (5 families) showed up of the 16 kids/8 families we invited. I was very worried about how much energy it’d take and how it’d go, especially because we were just coming off a rough week of illness, but it worked out really well in the end. It was small enough to be just manageable, with one family helping us with Smol Acrobat, and the other families occasionally assisting with stages of cleanup and kid management.
We splurged on the activity and the food, we saved on the cake (Costco: $25, first time we’ve ever had one of their famed sheet cakes) and the decor (Party City: $20). The place provided almost none of the assistance they had promised so I was orchestrating so most of the event unexpectedly. That kept me too busy to socialize but we did each catch up a little with each set of parents. JB was thrilled to see their friends and ran an illicit (temporary) tattoo parlor out of the bathroom for them. Of course they did. Smol Acrobat was briefly put out that they didn’t get one too, but they weren’t willing to wait with the older kid crowd and moved on quickly.
Year 4, Day 314: I’ll do a full write-up later. Our power is still out today, internet is still down, my phone’s data connectivity is next to nothing. The kids are sick, I have a sore throat and a huge workload, and we spent too much of the day navigating choked roads to get to a safe place where we could connect to the internet and charge the devices enough to get us through the day and night.
The county libraries were all open to the public for water, snacks, and charging.
I’ll tell you what, functioning by lamplight, with only power for the fridge and no other appliances, really narrows your focus on what you can do. No dishwasher, no vacuuming the mess tracked in from the storm, no toaster oven, no microwave, no hair dryers, no space heaters, no heating pad.
We still have running water and plumbing, and gas to heat food and the water for bathing, and I cannot tell you how thankful I was for that much. We are so not equipped for the loss of power, internet, gas AND running water.
Year 4, Day 315: POWER IS BACK. It’s weird to see the utterly still blue sky, with one enormous grey cloud hovering as if copy-pasted in place, after the stormy weekend with all the challenges and consequences. We get a one day reprieve, then it rains again tomorrow. I think that may be the end of the wet for a handful of days.
I may have overdone it trying to right the ship doing all the things this morning: 3 loads of laundry, ran the vacuum twice, ran the dishwasher, while trying to catch up on a couple hundred emails and projects.
With JB home sick another day, and trying to heft an unbelievable amount of work, I’ve been on edge and snappish. I decided JB won’t be going to their class this afternoon. They probably have the energy to and would be fine (masked as always) but I needed to take any one damn thing off my plate and that was my pick. It was a good call.
Smol Acrobat came home meowing sadly. They’re running a slight fever, appear flushed, and tell us “I’m not feew-wing well.” Their throat hurts and they’ve got that weird dry congestion that doesn’t result in a drippy nose, just leaves you feeling stuffed up with no relief. I had to spoonfeed them their dinner. I pulled out the remaining frozen half of the Japanese curry I cooked a while back for dinner. Thanks two weeks ago me!
We’re in for a rough night. Well, PiC is. He’s been fielding all the nights for a while. Even if he hadn’t, Smol Acrobat switched from wanting Mom cuddles and feeding at dinner to the quavery: “Daddy, can you take care of me?” and only wanting Daddy to give them their medicine and prepare them for bed.
Year 4, Day 316: JB hacking coughed their way through the night, Smol Acrobat sobbed and fussed through the night. I offered to take over at 2 am but PiC waved me off. In the end that was for the best, I needed that sleep pretty badly and Smol Acrobat had to stay home with us today with that fever. We traded off work time slots throughout the day.
They were surprisingly chipper, despite their very rough night, and managed a halfway decent nap midday. I was so tempted to lay down with them but I’d just get mad having to get back up again even if I napped. As a night ogre, the waking up transition at any time is unpleasant.
JB and I also had an appt at the orthodontist after school. They’re headed for braces in a few months. Sigh.
Texting with an old high school classmate who’s visiting our old teachers brought on the sads of a blobby amorphous feeling that I don’t belong anywhere in meatspace. I think this is about feeling very disconnected from the friend groups online and off. One of my closest daily friends has dropped out of contact for almost two years now, and I miss them deeply. I know it was for their own reasons, I respect that, I just miss them. (Separately, it makes me wonder if I’m just a bad friend because I’m the only one who was dropped. Maybe I’m just too much of whatever I am.) It’s gotten worse since Twitter went to pieces and my social web was destroyed. I have this space, some folks in the Discord and a bit of Bluesky, I peek into Instagram because I was forced to create one for the business. It feels scattered. That sense of wide connectedness is gone. Even though I still text with a handful of friends from the ‘nets, I feel out of sync with myself and with the world, emotionally.
I had to do a Murderbot and face the wall this evening for a minute when the feelings were too much. I’m in the middle of Network Effect right now and very much empathize with Murderbot. I hate feelings. š
Year 4, Day 317: Frost everywhere this morning! Aftermath cleanup continues. I’ve finished recharging all the lanterns and the Yeti. That just leaves the crank radio to charge. It can be charged by cranking of course, that’s the point of it, but why not save our arms if we can charge it ahead of time. So I finally get JB to school, load Smol Acrobat up for their ride with PiC, clean up a bit around the house and reheat my breakfast eggs. Sit down and really start to dig into emails and urgent morning work stuff. Take a bite of egg. Miss a text. See a call come in from PiC: they got a flat tire 3 miles away from daycare. ARGH. The full round trip rescue ate my morning. Who put this curse on us? It’s one thing after another this week. Relentless.
We had to skip JB’s afterschool class again because I could not handle losing another 2 hour chunk of my time today. It’s all management work today and I don’t fancy working until 11 pm again. (That was last night.) It wasn’t until dinnertime that I remembered my whole breakfast, lunch, and snack was a plate of scrambled eggs and half a box of Wheat Thins. Not ideal.
There were “this is where rain may fall again Thursday!” headlines that I waved off and YEP! IT WAS US. PiC and Smol Acrobat got caught out biking home. They were drenched.
Year 4, Day 318: Work work everywhere, as far as the eye can see. This was my first mostly uninterrupted workday all week. I was desperate for one but didn’t dare say it out loud for fear of triggering another spontaneous combustion of my day. I’m not at all recovered from the week but having gotten through the worst of the workload, I can finally say TGIF.
Also not great: PiC’s company is a multinational one so from their POV this isn’t (maybe) that big a deal but from ours it is: They just laid off a couple hundred people. Still no idea on how much of this will roll over to his department, and we wouldn’t know until it hit. He’s not high enough up to be privy to those conversations.
1. JB took a very proactive lead in helping keep Smol Acrobat entertained when I was working on paperwork this weekend and then played with them the whole time at the playground when we walked to the park. They aren’t usually that focused and these outings are more often like handling two only children wanting things they want when they want it.
Year 4, Day 300: A thunderstorm roared through last night. We would have slept right through it like cozy babies but Sera needed a quick outing at midnight to make sure her bladder wouldn’t be too stressed this morning (because of her steroids). You should have seen the look she gave me. You want ME to go out in THAT??
Anyway, that was a necessary soaking because at 7 am sharp she was click-clacking to the front door because she needed to go out again. It would have been much worse, and earlier, if we hadn’t gone out at midnight. As tired as I was, it meant that everyone got up and out on time for the first time in weeks.
The kids have been generally cooperative for the past couple weeks. It’s weird. There are the usual hiccups and temper tantrums and all that but it’s on the very mild end of the range. I have to hold on to the memory of this when we move into the next phase of very uncooperative.
A loved one is going through a medical thing right now. Not quite a crisis but it could be one if their body doesn’t respond to the medications. Something like Sera, I suppose, except their medical issue currently has a more clearcut set of pretty dire consequences if they don’t respond to the medication route. I’m checking on them daily and worrying in the back of my mind.